Friday, June 21, 2013

Teaching the brain old/new tasks

Recovery…I’m reading a book recommended by eldest daughter, one of my wonderful ‘recovery coaches.’ It is Left Neglected by Lisa Genova. The story is of a high-powered Boston Human Resources executive, living a fast and full life with a family of three children, a great husband, and a cottage in the Vermont hills where they ski all winter.

Then one day Sarah is involved in a serious car accident. She is quite mangled, and most importantly, her brain is injured. “Left” ceases to exist for her brain. Her hand, arm, that side of the body, and of her visual world – gone, neglected by the brain, which no longer includes those things in its banks. Thus “Left Neglected.”

The story is of Sarah’s coping, first by denial and rage, then slowly by effort, with support she doesn’t want or appreciate, with many harrowing setbacks. She sometimes drools from the left side of her mouth. Can’t feel it, it isn’t there. Drags her left leg. If she lifts it, she has no idea where it is and therefore where it will come down, She paints a picture; the left side of the scene trails off into no colour. It isn’t seen. Get the picture? Brain damaged is being faced with the monumental task of re-training this brain to know “left,” to recognize and account for “left.”

My situation bears only a slight resemblance to this woman’s plight. I have been  so lucky! I have had only to retrain my brain to read text and learn to relax. She has to teach it the whole left world!

BU I find myself identifying with her so strongly! The book isn’t “pleasant’ to read for me. It’s hard work with terror around every corner as well as tears of joy when she is taught to snowboard. I pick up a book and drop one letter from a word, and the whole page falls apart. I have a simple job: teach my brain to read again. Teach my heart to slow down, my blood pressure to slowly drop. My job, like Sarah’s, is to recover. She struggles to recognize realistic goals…me, too, on a much smaller scale.

And I walk with her, agonize when she gets stuck in the fridge, or can’t close the public washroom cubicle door. And she is a perfectionist, who had succeeded in being just about perfect in her job, though not in her ‘life.’

Enough about Sarah, You want to read it? Look in the Library or Amazon. Voila, there it is, on your left, not neglected, waiting for you to share this remarkable journey.

Now I am not saying that my recovery journey is like Sarah’s. Her’s is colossally difficult over many months, in the midst of raising three kinds, dealing a with a mother who is not close to her, and a husband who hard in IT, but may lose his job.

Me? I have had to learn to read, deal with some sleeplessness, like tonight, some anxiety that comes in various ways, discover and interiorize “pace.” I could never do this, when running. I always started too fast, and wore out before the end. This time, if I ‘run out of gas too soon, I will die before I’m ready. And I’m not ready now.

So yes, I am lucky, but teachable, and trainable, with a compliant and committed spirit. I measure my BP, I breathe deeply, I walk whenever I can, even though I can now take the car, and I notice people in pain more like I did twenty years ago. My attention span remains woefully short, but I keep starting up the book again.


No more marathons for me, but perhaps enough re-connected brain tissue that I can focus on an hour at my desk in preparation for a Sunday assignment. I managed to come up with a crazy idea for my son’s birthday, and carry it out alone! Something… not snowboarding like Sarah, but something! He won’t be disappointed this year!

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